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Entering Half-Marathon (Rotorua)

2/21/2013

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I've entered to run the Half-Marathon in Rotorua on Sunday, 10th March. My legs have felt real funny/unusual over the last couple of weeks, and my balance seems awol. Of course, the worst passes through your mind, but then "Whatever" (not quite brave enough for "Bring it on!"). It may just be a bad spell soon to be followed by a good one....and if not, I'd better do this run while I can! The fatigue-thing I've been free of for the last 2 days, after a month or so in the shite, so who knows.

The course runs through the Redwood Forest (I believe) - the scenery should be good. It's all on logging roads (I think), so less falls, crawls, and backward steps than on the Tussock Traverse. Hopefully I can nail 3 hours.

If you're reading this, and are feeling generous, you could 'support' me - or any one of five Kiwis - by donating via http://www.fundraiseonline.co.nz/TT/. 
And if you think I look a tad shady, see a feature page on the Neurological Foundation website, http://neurological.org.nz/what-you-can-do/fundraising/tony-treloar-mndguy-running.

Cheers very much!
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February 09th, 2013

2/9/2013

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Thought I would write on a day when MND is harder work than usual. Hit the wall yesterday after threatening to do so all week. Was hoping I could win the mental battle, and get out there for one of my stumbling trots over the weekend. Sunday evening now, so No. What a friggin' wimp. The fatigue 'snot' won. Worse, I had to turn down two offers of a meal and company on Saturday night from both family and a friend, Far too fragile. Fatigue is a constant companion, I'm used to covering it up and pushing on; but when the offers came in, nothing was working - dropping things, staggering into doorways, drooling, desperately seeking sleep/relief but (when it's fatigue, rather than ordinary tiredness) sleep
never arrives. The internal flame was barely fluttering, and combined with the 'labile affect', an emotional mess was barely a blink away. 

The guilt of turning down caring people, though, because of my own inabilities, is the pits. Rock and a hard place. At least today I can appreciate the good fortune of being placed in such a 'quandary' - it occurred to me some MND'ers who live by themselves maybe get no or few invitations.

If you have any illness, or MND itself, or simply feel lonely, write to me. I'm not the most 'regular' pen-pal, but I have good 'ears', and can flick you a few thoughts.
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    Tony, age 54, of Taupo. 
    Very happy to converse with anyone, on any subject, by email or text, or over a coffee if you are ever in Taupo.

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